About Me
- AydenAva
- I am 4 years old & I came into the world early .I was taken to a different hospital because I couldnt breathe.At this hospital I was diagnosed with severe Spondyloepipseal dysplasia congenita,Dwarfism.I needed a tube to eat & breathe.I have gone through 15 surgeries & kicked butt everytime.Mommy says I'm the toughest kid she knows.I was really sick for 3 years so my Mommy & Daddy took me to Cincinnati Childrens Hospital & they made me all better.In May 2008 Dr. Cotton in cincinnati took my rib cartalidge out & put it into my trachea & took my trachy out,now I can breathe all by myself!!!Since getting my trachy out,I went to the beach for my first time ever!!,I had so much fun building venom sand castles.& I got to go camping & fishing & touch a real frog!!!I have another big surgery to go,a third of my stomach is in my chest cavity & sometimes gives me a tummy ache,but mommy & daddy tell me how brave I am,so I know I can overcome anything,just like a real superhero!!.......................SED congenita,tracheomalacia,nissen & G-T,Trach,paraesophegeal hirnea,C-spine instabilities.RESOLVED laringeal,bronco malacia,pierre robin sequence,cleft palate,retching
3 comments:
Hi!
I love looking at the photos of the children... they are too cute.
Jeremy, your dad gave me the website to see Ayden singing on stage but I had computer troubles and couldn't view it. Somewhere I lost it. Can you please e-mail it to me so I can try again? I gave you my card with my e-mail address when you stopped with your dad.
Thanks Cricket Humphrey
AHH! So awesome. I showed Val Dean. He loved it! Your kids are so adorable.
I know what you mean now by best friends, worst enemies. Now that Vivien is standing she is no longer his little baby... she is competition! It's awful. He keeps pushing her down. He wants her to stay crawling. They are about the same height now. She is in the 95Th percentile for height. I hope this jealousy does not last long....but I am afraid it might.
What a great photo....super cute!
Lisa
(trach forum)
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