About Me
- AydenAva
- I am 4 years old & I came into the world early .I was taken to a different hospital because I couldnt breathe.At this hospital I was diagnosed with severe Spondyloepipseal dysplasia congenita,Dwarfism.I needed a tube to eat & breathe.I have gone through 15 surgeries & kicked butt everytime.Mommy says I'm the toughest kid she knows.I was really sick for 3 years so my Mommy & Daddy took me to Cincinnati Childrens Hospital & they made me all better.In May 2008 Dr. Cotton in cincinnati took my rib cartalidge out & put it into my trachea & took my trachy out,now I can breathe all by myself!!!Since getting my trachy out,I went to the beach for my first time ever!!,I had so much fun building venom sand castles.& I got to go camping & fishing & touch a real frog!!!I have another big surgery to go,a third of my stomach is in my chest cavity & sometimes gives me a tummy ache,but mommy & daddy tell me how brave I am,so I know I can overcome anything,just like a real superhero!!.......................SED congenita,tracheomalacia,nissen & G-T,Trach,paraesophegeal hirnea,C-spine instabilities.RESOLVED laringeal,bronco malacia,pierre robin sequence,cleft palate,retching
1 comment:
wow! I have not checked your blog in forever. Ayden looks great. Your family pics are so adorable and I can't believe he is in first grade. When did he get the scooter? How did you know when to do it? My son will no longer walk up or down the stairs or very long distances. He wont even walk out to the car. I wanted to ask you if Ayden ever had sleep problems. My son, Val Dean is going through some difficult sleep issues. He seems like he can't settle his body down. He is tired and cranky all day but can't seem to fall asleep and he wakes during the night and early in the morning. He says his legs hurt or his tummy hurts but I am not sure thats the problem. Anyway it's driving me mad so I thought I might ask you. Whats the latest with you guys? I cant wait to hear from you!
Thanks, Brooke Dalling
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