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About Me
- AydenAva
- I am 4 years old & I came into the world early .I was taken to a different hospital because I couldnt breathe.At this hospital I was diagnosed with severe Spondyloepipseal dysplasia congenita,Dwarfism.I needed a tube to eat & breathe.I have gone through 15 surgeries & kicked butt everytime.Mommy says I'm the toughest kid she knows.I was really sick for 3 years so my Mommy & Daddy took me to Cincinnati Childrens Hospital & they made me all better.In May 2008 Dr. Cotton in cincinnati took my rib cartalidge out & put it into my trachea & took my trachy out,now I can breathe all by myself!!!Since getting my trachy out,I went to the beach for my first time ever!!,I had so much fun building venom sand castles.& I got to go camping & fishing & touch a real frog!!!I have another big surgery to go,a third of my stomach is in my chest cavity & sometimes gives me a tummy ache,but mommy & daddy tell me how brave I am,so I know I can overcome anything,just like a real superhero!!.......................SED congenita,tracheomalacia,nissen & G-T,Trach,paraesophegeal hirnea,C-spine instabilities.RESOLVED laringeal,bronco malacia,pierre robin sequence,cleft palate,retching
5 comments:
Good Morning! Today is going to be a great day I feel it. Too bad I don't have gas money otherwise I would drive to Cinncinati so I can see you at the hotel because that is where you are going to be.
Good Luck I am saying my prayers give Ayden and everyone a kiss for me.
Love Jess
you all will be in my thoughts and prayers this morning ayden you go get em'
love aunt teri
You go get'em Ayden. I've been thinking about you all morning. I know Mommy is going to be getting on soon with some REAL GOOD NEWS! I love you very much. Please give your sister Ava a BIG kiss and a million dollar hug from Uncle Mike & Aunt Claudia.
PS: I love your masks, they're very scary!
OH HAPPY DAY!!!!
AYDEN.....
You are such an INSPIRATION to me. No matter what has been placed before you, you just persevere. You have strength beyond any super hero. I am so proud of you buddy. I cant wait to see you Monday!!!!
I LOVE YOU BUNCHES & BUNCHES!!
Aunt TT
its jason.i heard your comin home mon.thats cool.i am off monday .please give me a call if i can come visit.love u all.miss u .c u when u get home
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