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About Me
- AydenAva
- I am 4 years old & I came into the world early .I was taken to a different hospital because I couldnt breathe.At this hospital I was diagnosed with severe Spondyloepipseal dysplasia congenita,Dwarfism.I needed a tube to eat & breathe.I have gone through 15 surgeries & kicked butt everytime.Mommy says I'm the toughest kid she knows.I was really sick for 3 years so my Mommy & Daddy took me to Cincinnati Childrens Hospital & they made me all better.In May 2008 Dr. Cotton in cincinnati took my rib cartalidge out & put it into my trachea & took my trachy out,now I can breathe all by myself!!!Since getting my trachy out,I went to the beach for my first time ever!!,I had so much fun building venom sand castles.& I got to go camping & fishing & touch a real frog!!!I have another big surgery to go,a third of my stomach is in my chest cavity & sometimes gives me a tummy ache,but mommy & daddy tell me how brave I am,so I know I can overcome anything,just like a real superhero!!.......................SED congenita,tracheomalacia,nissen & G-T,Trach,paraesophegeal hirnea,C-spine instabilities.RESOLVED laringeal,bronco malacia,pierre robin sequence,cleft palate,retching
4 comments:
hi angie its laura i'm glad hes doing well we are all praying for him here in buffalo give him a hug for me
Hello guys !
I just want you to know we are thinking of you and praying for Ayden. We love you sooo much !!!! I wish we could be there for you right now. You guys are the best parents ever. Hang in there ! Angie sorry I missed your call this morning I was in the shower and Jon gave me the message, I was so upset because I really wanted to talk to you. I read your updates at work and I could not get through reading it without getting teary eyed. I just wantyou to know you guys are very special parents and Ayden is lucky to have such wonderful caring parents like you. Don't worry you know Ayden will recover fast because he is such a strong little boy. We Love You !!!XOXOXO
Love,
Aunt Lisa, Uncle Jon, Lexi and Evan
Ayden, Your friends in Canada are thinking of you right now. We know you are going to do great! Love, Ian, Suzanne, Berkeley, Griffin and (a trach free) Parker
Hi everyone,
We wanted you to know we're praying for Ayden and keeping all of you in our thoughts.
Happy to hear Ayden's doing well,
he's a very strong willed boy and lucky to have both of you for his parents.
love to all,
Bob and Diane
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