About Me
- AydenAva
- I am 4 years old & I came into the world early .I was taken to a different hospital because I couldnt breathe.At this hospital I was diagnosed with severe Spondyloepipseal dysplasia congenita,Dwarfism.I needed a tube to eat & breathe.I have gone through 15 surgeries & kicked butt everytime.Mommy says I'm the toughest kid she knows.I was really sick for 3 years so my Mommy & Daddy took me to Cincinnati Childrens Hospital & they made me all better.In May 2008 Dr. Cotton in cincinnati took my rib cartalidge out & put it into my trachea & took my trachy out,now I can breathe all by myself!!!Since getting my trachy out,I went to the beach for my first time ever!!,I had so much fun building venom sand castles.& I got to go camping & fishing & touch a real frog!!!I have another big surgery to go,a third of my stomach is in my chest cavity & sometimes gives me a tummy ache,but mommy & daddy tell me how brave I am,so I know I can overcome anything,just like a real superhero!!.......................SED congenita,tracheomalacia,nissen & G-T,Trach,paraesophegeal hirnea,C-spine instabilities.RESOLVED laringeal,bronco malacia,pierre robin sequence,cleft palate,retching
3 comments:
Hi Ayden,
I am so proud of you. You look so handsome in the pictures. I just love your smile. It made me smile to see you coloring. I showed everyone your pictures and they are just thrilled. Keep up the good work. You are the strongest boy I ever met. I love you very much and I can't wait to see you.
All my love. Aunt Terri. Tell mom,dad, gramma and grampa I said hi and I miss all of you.
wow he looks great now that's the ayden we know and love what a fighter he is an amazing kid you are still all in my thoughts and prayers
Ayden! You are so beautiful! I love to see that smile! You have no idea what you've just been through. Oh the stories you will hear when you get a little older! B5 - here comes Ayden, get a wagon ready!
-Love, Suzanne
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