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About Me
- AydenAva
- I am 4 years old & I came into the world early .I was taken to a different hospital because I couldnt breathe.At this hospital I was diagnosed with severe Spondyloepipseal dysplasia congenita,Dwarfism.I needed a tube to eat & breathe.I have gone through 15 surgeries & kicked butt everytime.Mommy says I'm the toughest kid she knows.I was really sick for 3 years so my Mommy & Daddy took me to Cincinnati Childrens Hospital & they made me all better.In May 2008 Dr. Cotton in cincinnati took my rib cartalidge out & put it into my trachea & took my trachy out,now I can breathe all by myself!!!Since getting my trachy out,I went to the beach for my first time ever!!,I had so much fun building venom sand castles.& I got to go camping & fishing & touch a real frog!!!I have another big surgery to go,a third of my stomach is in my chest cavity & sometimes gives me a tummy ache,but mommy & daddy tell me how brave I am,so I know I can overcome anything,just like a real superhero!!.......................SED congenita,tracheomalacia,nissen & G-T,Trach,paraesophegeal hirnea,C-spine instabilities.RESOLVED laringeal,bronco malacia,pierre robin sequence,cleft palate,retching
4 comments:
I LOVE THESE Pictures!!!
Ayden,
TT, Uncle Scott and Gracie are so Very Happy and proud of you!!!
I wish I was there with you guys!!
Love TT
Thanks for sharing the cute pics...glad he is on the road to recovery and we will keep all of you in our prayers. Can't wait to hear his new voice back here in Buffalo!
Love, Lynda, Bobby & Tori
Ayden,
It is so great to see that smile.
Do you know that you put a smile on everybody looking at your pictures. That's true power. You are such an amazing boy. Stay strong.
Love,
Diane & Bob
Aunt TT told me at work this morning how awesome you are doing! And just look at that gorgeous, happy, HUGE smiley face :-) So proud of you and glad that you are in great spirits! Once again . much love.....
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