Grandma & me!
About Me
- AydenAva
- I am 4 years old & I came into the world early .I was taken to a different hospital because I couldnt breathe.At this hospital I was diagnosed with severe Spondyloepipseal dysplasia congenita,Dwarfism.I needed a tube to eat & breathe.I have gone through 15 surgeries & kicked butt everytime.Mommy says I'm the toughest kid she knows.I was really sick for 3 years so my Mommy & Daddy took me to Cincinnati Childrens Hospital & they made me all better.In May 2008 Dr. Cotton in cincinnati took my rib cartalidge out & put it into my trachea & took my trachy out,now I can breathe all by myself!!!Since getting my trachy out,I went to the beach for my first time ever!!,I had so much fun building venom sand castles.& I got to go camping & fishing & touch a real frog!!!I have another big surgery to go,a third of my stomach is in my chest cavity & sometimes gives me a tummy ache,but mommy & daddy tell me how brave I am,so I know I can overcome anything,just like a real superhero!!.......................SED congenita,tracheomalacia,nissen & G-T,Trach,paraesophegeal hirnea,C-spine instabilities.RESOLVED laringeal,bronco malacia,pierre robin sequence,cleft palate,retching
5 comments:
Good Morning,
Yes we are all home safely thanks to Uncle Scott's driving. But I would rather be there chilling w/ my "main man". Ayden, I must say this again you are AMAZING!!!
Ava was a little angel in the car. We all kept saying what child at 9 mos old would be so good in a car for 7hrs. But then again, these are Jay and Angie's children and they are such awesome kids. Jay and Angie dont you worry about the "little princess" just get our "spidey" better so he can come home.
Mom and Dad, please continue to give Ayden kisses and hugs from me and keep telling him how much I love and are proud of him. And I cant wait to play FBI agents with him!!!
Love Aunt TT
Good morning to you all. Glad to hear that Ayden is doing better. Hope you have a great day and we can't wait to hear when our "hero" gets to come home.Jay & Angie, please give Ayden a kiss & a hug from us. We love you guys and appreciate you keeping us all posted.
good morning
glad to hear things are going pretty good, send everyone mylove
aunt teri
wow he is an amazing little guy i am so glad to hear everything is great you are all in my thoughts
Ayden! You are doing such a great job and now I know where your good looks come from- at least in part. Grandma is gorgeous! It won't be long before you are taking wagon rides around B5. Keep up the good work! Love, Suzanne
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