About Me
- AydenAva
- I am 4 years old & I came into the world early .I was taken to a different hospital because I couldnt breathe.At this hospital I was diagnosed with severe Spondyloepipseal dysplasia congenita,Dwarfism.I needed a tube to eat & breathe.I have gone through 15 surgeries & kicked butt everytime.Mommy says I'm the toughest kid she knows.I was really sick for 3 years so my Mommy & Daddy took me to Cincinnati Childrens Hospital & they made me all better.In May 2008 Dr. Cotton in cincinnati took my rib cartalidge out & put it into my trachea & took my trachy out,now I can breathe all by myself!!!Since getting my trachy out,I went to the beach for my first time ever!!,I had so much fun building venom sand castles.& I got to go camping & fishing & touch a real frog!!!I have another big surgery to go,a third of my stomach is in my chest cavity & sometimes gives me a tummy ache,but mommy & daddy tell me how brave I am,so I know I can overcome anything,just like a real superhero!!.......................SED congenita,tracheomalacia,nissen & G-T,Trach,paraesophegeal hirnea,C-spine instabilities.RESOLVED laringeal,bronco malacia,pierre robin sequence,cleft palate,retching
5 comments:
Ayden,
You look awesome!!!
I am so proud of you.
I LOVE YOU BUNCHES AND BUNCHES!!
Love Aunt TT
ayden,
you look so good and handsome of course, keep the gppd work
love aunt teri
Ayden,
you look F-A-N-T-A-S-T-I-C.. we are so proud of you. it's those super hero powers that makes you sooo strong. keep up the great work pal. love you lots, cousin darlene & eric xoxo
Ayden,
hey buddy! it was so nice being with you in cincinnati this weekend, and seeing first hand what a wonder you are! your aunt tt will get a kick out of me saying that i wish i was half the man you are!! as funny as it sounds, i really really do . . . way to go, kiddo!
Love and Miss you . . . Uncle Scott
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