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About Me
- AydenAva
- I am 4 years old & I came into the world early .I was taken to a different hospital because I couldnt breathe.At this hospital I was diagnosed with severe Spondyloepipseal dysplasia congenita,Dwarfism.I needed a tube to eat & breathe.I have gone through 15 surgeries & kicked butt everytime.Mommy says I'm the toughest kid she knows.I was really sick for 3 years so my Mommy & Daddy took me to Cincinnati Childrens Hospital & they made me all better.In May 2008 Dr. Cotton in cincinnati took my rib cartalidge out & put it into my trachea & took my trachy out,now I can breathe all by myself!!!Since getting my trachy out,I went to the beach for my first time ever!!,I had so much fun building venom sand castles.& I got to go camping & fishing & touch a real frog!!!I have another big surgery to go,a third of my stomach is in my chest cavity & sometimes gives me a tummy ache,but mommy & daddy tell me how brave I am,so I know I can overcome anything,just like a real superhero!!.......................SED congenita,tracheomalacia,nissen & G-T,Trach,paraesophegeal hirnea,C-spine instabilities.RESOLVED laringeal,bronco malacia,pierre robin sequence,cleft palate,retching
7 comments:
i am so glad to see these pics i look forward to it all day. ayden you are so cute, you power rangers are a site to see.
love aunt teri
Hi All,
These pictures are Awesome!!!
Ayden,
I am sure that you had so much fun today. I wish I was there to play with all you guys, but I am getting our missions from the FBI so that when you get home we can debrief and go get the bad guys. I love you Buddy and I am so happy you are doing so GREAT!!
Love TT
Ayden looks so good! I can't wait to see all fo you at the end of the week!
Hi Angie, Jay, and Ayden,
These pics gave me chills. I am so happy for you. Your dad stuck his head out the door and told me to check out the new pics.
Iam so glad you all had a fun day!!!!!!!!! Take Care!!!!!!
cindy------------
Dear Angie and Jay- I have been reading Ayden's blog for the past 1.5 hours and looking at all the pictures - I have chills - I'm so happy for you guys-- I have been thinking about you and praying for you --- Your family is an inspiration to all of us - Ayden is amazing -- you can see his special light -- Take care - your in our prayers - Love Maria, Todd and the girls
Hi Angie and Jay,
Had to write again.Can't wait to see an update today on you guys.After my yesterday,as aweful as it was, it was nice to sit down and see your smiling faces. You were a distraction for me! Thank you.I have to keep checking for gray hair his week!!!!!!!!!!!
Give Ayden a girl power hug for me!!!!!!!!!!!!!!!!!!!!! Take care.-----Cindy
Thanks for sending all the pics. I really look forward to seeing Ayden and the gang. It starts my day off right. Thank God for miracles. Sometimes when we ask for them, people expect the "waters to part" or lightning bolts to start "burning bushes". Instead God sends the right doctors and nurses & hospitals.
THANK GOD FOR MIRACLES!
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