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About Me
- AydenAva
- I am 4 years old & I came into the world early .I was taken to a different hospital because I couldnt breathe.At this hospital I was diagnosed with severe Spondyloepipseal dysplasia congenita,Dwarfism.I needed a tube to eat & breathe.I have gone through 15 surgeries & kicked butt everytime.Mommy says I'm the toughest kid she knows.I was really sick for 3 years so my Mommy & Daddy took me to Cincinnati Childrens Hospital & they made me all better.In May 2008 Dr. Cotton in cincinnati took my rib cartalidge out & put it into my trachea & took my trachy out,now I can breathe all by myself!!!Since getting my trachy out,I went to the beach for my first time ever!!,I had so much fun building venom sand castles.& I got to go camping & fishing & touch a real frog!!!I have another big surgery to go,a third of my stomach is in my chest cavity & sometimes gives me a tummy ache,but mommy & daddy tell me how brave I am,so I know I can overcome anything,just like a real superhero!!.......................SED congenita,tracheomalacia,nissen & G-T,Trach,paraesophegeal hirnea,C-spine instabilities.RESOLVED laringeal,bronco malacia,pierre robin sequence,cleft palate,retching
4 comments:
Hi guys I am so happy everything is going well. We all know who is standing next to you guys through all this making sure everything is ok.
I am so happy to see these new pictures he looks so good. And to be able to actually hear what he really sounds like after almost 5 years is truly amazing.
LOve you guys talk to you soon!
hey guys
i am so glad to hear everything is going good, and it is so nice to see pics, makes me feel a little closer. you all stay strong and healthy. ayden of course you look great. hugs and kisses to all.
misss everyone
love ya teri
Ang,
This picture melts my heart.
TT
Hi guys. I am so glad to hear that everything is going well with little ayden...he looks great and glad to have the trach out, i bet it is so amazing that you can listen to him now......and little miss ava is beautiful...our thoughts are always with you guys...
Love your cousin
Jessica, Joe and miss hannah
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